BELOvEDS, A Nania Foundation Inc. is a recognized 501(c)(3) non-profit organization dedicated to raising awareness for vascular Ehlers-Danlos Syndrome (vEDS) as well as being committed to raising funds for vEDS research and giving back to the vEDS community.
In the fall of 2017, our family was introduced to the words vascular Elhers-Danlos Syndrome, also known as vascular EDS or vEDS, a rare genetic condition that affects the body’s connective tissue. As a family, we are committed to raising awareness and funds while we fight and pray for a successful treatment for vEDS, not only for our family members, but for every single person and family affected by this condition.
In the words of Helen Keller, “Alone we can do so little, together we can do so much!” With each dollar, and with each day that passes, we will, hopefully, get a day closer to a viable treatment for vEDS.
We are incredibly honored and humbled to have the support of good friends and family.
Thank you! Thank you! Thank you!
With Love and Gratitude Always,
The Nania Family
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